I’d like to think that despite my pain, I’m pretty much independent. But, I wouldn’t be if I couldn’t outsource some of the more taxing responsibilities of adulthood. For a long time, I judged myself pretty hard for using these services. I just wanted to be able to live an adult life like everyone else. Turns out, able-bodied adults need backup too. And their need for options has made my life 1000x easier.
I am including referral links/codes in this post. I don’t make money, but do get a discount in return if you purchase through them. You are not obligated to use my code if you want to try one of these services! Google and get the best discount you can find 🙂
Why, hello old friends. That is if you still come visit round these parts.
I didn’t really know what to do with this corner of the internet any more and every time I came back, it felt like a false start. Why should I write anything? I’m not really an expert at anything “lifestyle”. I dropped out of fashion school and I’ve been wearing winged eyeliner since the day I discovered liquid eyeliner was a thing. If we were talking, there would likely be lipstick on my teeth from the funny way I talk.
Some days I think the only thing I truly know is pain. CRPS has been the the biggest thing in my life for the nearly 8 years that I have known what it was. It is the thing that forces me to overcome hurdles that are normal people Thursdays. In honor of Rare Disease Day‘s campaign to show your rare this year, I thought I would write about an ordinary day, a day whose only remarkable feature is that it is a day, seen through the lens of CRPS. Read more
It’s 3 weeks into 2018. I’m 22 days out of the dumpster fire that was 2017. The government has shut down, the world seems to be teetering on the brink of war and it seems more and more like the only way to survive with CRPS will be to go on disability. Read more
I’m a hospital pro. I’ve had a gazillion and a half visits to the hospital – both long and short. Inpatient and out patient.
I’ve learned a few things about what I need when I go. What the things I always forget are. Read more
Dear Keepers of the Future for those of us who are sick and disabled,
It’s ok, you can roll your eyes at the open-letter format. But this is important. Real, future-ensuring important. Read more
“I was afraid I might break you.”
Ha. I’m afraid I might break me. I’m 7 years, 43 nerve blocks and 3 spine surgeries into this rare disease diagnosis.
But it wasn’t the first time that I’ve heard that phrase or one just like it. Read more
I’ve been holding onto this recipe for months. I perfected it right before I decided to stop writing FrannyCakes and evaluate whether or not I wanted to keep putting myself out there. Read more
I like milestones. I like looking back and seeing just how far I’ve come.
Especially because this milestone. Yesterday was the one year anniversary of Mary Fran 3.0. It’s been 366 days since my shiny new cyborg parts.
But more importantly, it’s been just over two years since I took my first tentative steps into the world of dance.
This post is sure to get a little lengthy, I’m reflecting on what all my teachers have taught me in the past year. For the TL;DR version, just watch the video (after the break). Read more
(Forgive my attempt at a punny-headline…)
We all make resolutions and state our goals at the start of the year (even when we try to avoid the whole practice). There’s something so tempting about that start to the new year.
Two months ago, I decided that 2017 was going to be the year that I stopped wearing pants. Read more